Respite, with Whales

Our three week trip was, in part, a medical trip, and in part an experiment in living fully in the face of Walker’s MdDS.

The illness is not better, although she is more resilient in working with it. The only researcher on the planet studying this terrible affliction is at UCLA; we had an appointment with her that took us to the W. Coast.

With that as a starting point, we became resourceful. We put together frequent flier miles, a friend’s casita in Baja to stay in, good friends in Hawaii, and a daughter in SF into a respite experiment. It included our 27th anniversary (Feb. 2,) for which we wished to celebrate with a time-out from the busyness of the lives we have created. We were in need of the peace of wildness. We were ready for the jaw-dropping majesty of being with the most magnificent sentient beings the Earth has every birthed: the blue whales, greys and humpbacks of Baja and Hawaii.

It is, generally, our intention to push back on the limitations that Walker’s condition imposes on us. We are experimenting with the boundaries of what we can do, while also respecting the fragility of her nervous system. We took this trip mindfully and slowly, knowing this is necessary if travel is to be possible at all. My habitual urgency to experience everything is being gradually replaced by deep gratitude for Walker and appreciation for what each moment offers.

The UCLA doctor generously gave us three hours of her time, an unusual experience in medicine. It was helpful to get her perspective and her confirmation of Walker’s diagnosis. At the same time, there are no miracles on the horizon, no approaches to treatment that we’ve not thought of or already tried. This was not a surprise, nor even really disappointing. We are still facing what we’re facing; life sometimes shows up in inarguable facts.

IMG_8099.jpgRegardless of what did or did not happen at UCLA, we are more alive from declaring it important to be in the presence of 50 foot long highly intelligent whales, who live as they have lived for hundreds of thousands of years, and who celebrate, love their young, and thrive, for now, in a changing world. We are more alive from spending three weeks together, listening to what calls us, and being in wild places. We are more alive from experiencing ourselves as part of the whole of life: miraculous, changing, unfolding.

We are learning to let life live through us, enjoying the precious moments we have, being led by love.

debra roberts says:
Feb 14, 2012 04:18 PM
What a profound and precious sharing - thank you so much ... despite the considerable challenges, you guys are co-crafting a life of sublime and sacred creative health together. As always, am at your feet.
Doug says:
Feb 14, 2012 06:10 PM
Thanks, Debra. And, the surprise to me is that much of the quality of our life together is because of, not despite, the challenges. It's very clear to both of us that the health issues have brought us closer together. More interdependent. More grateful and appreciative. And, more forgiving (most of the time!) Hmm... I guess it's that "for better or for worse, in sickness and in health" stuff in the vows that we actually didn't say in our very non-traditional wedding.

I could say them all now, since I know much more about what I'm committing to and what's required to make it work! They say "life can only be understood in hindsight, but unfortunately can only be lived forwards."
Phoebe Haupt says:
Feb 14, 2012 06:17 PM
Thank you Doug for continuing to share your wisdom, and the courage, acceptance and determination that you and your wife demonstrate in the face of great hardship. You are both an inspiration and I thank you for your presence in my life. Always, Phoebe
t says:
Feb 14, 2012 07:46 PM
Hi,

Thanks for this sharing and communication. It's a reminder that all that life brings is part of the hero/heroine's journey. It's the journey of being fully and becoming fully human with all the love, joy, breakdowns and challenges. I appreciate and have gratitude for the last sentence that informs what your journey is centered in. "We are learning to let life live through us, enjoying the precious moments we have, being led by love". It's a wonderful, meaningful and beautiful lived expression. I learn from that and deepen into my own journey to be led by love.

Best,

T
Lynne Dulken says:
Feb 15, 2012 10:27 AM
Thank you for your beautiful sharing. The way the two of you are holding this, growing, loving and evolving through the brokenness, is an inspiration for me personally and for my marriage (another long term one! ) as well.
With Love and Huge Respect, Lynne
Doug says:
Feb 19, 2012 07:16 PM
Ya know, Walker and I have a really strong Teacher (in the form of the illness.)

And, everyone has strong teachers.... WE all have our own row to hoe. I hope to articulate some of what seems to us important to learn; in so doing, I learn from the articulation, and from how others respond, and from what others share about their own journeys, their own teachers.

I really appreciate the support. Even though it is challenging at times, it is a strong reminder to get clear on what's important. Our lives are incredibly rich, and gratitude is running strong..
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